Tuesday, February 28, 2017

National Rare Disease Awareness Day

February 28th is National Rare Disease Day.  www.rarediseaseday.org. The main objective of this day is to raise awareness amongst the general public and decision makers about rare diseases and their impact on patients' lives. 

My great nieces and nephews are all decked out to bring awareness to little brother Jude's rare disease, Polymicrogyria.   On the back of their shirts it says "Jude's joy moves mountains. Jude's smile spreads hope."

Jude is a basketball loving little dude, with many small folds in his brain.❤. We will all be wearing these shirts at the tournament basketball game in Luck tonight.


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