Rare Disease Day

Great nephew Jude and almost 100 of his supporters were shining a light on Rare Diseases last night at the Shell Lake vs. Luck basketball game.

Big brother Gage and Jude

Cardinal Basketball Team and coaches

Jude and some of his supporters

Almost 100 friends and family wore their Rare Disease Awareness shirts to the game and gathered up for a photo afterwards.

I appreciate your willingness to take notice of Rare Disease Day, not just for Jude and his Polymicrogyria, but for all who live with rare diseases. Knowledge is power. 🖐

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Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.

https://www.rarediseaseday.org/